Podcast

Highlights from the *NEW* episode

"...the way that I like to call myself is, as a lived experience researcher. So, my research interests are really strongly motivated by my own and sometimes really difficult journey to receive a diagnosis, to manage my own mental health and sort of just getting that care that I need". At 00:03:04 Rachel shares her motivation in the research areas she's been working on and the reasons for joining the EmbedEDI project. She speaks from her experience both as a user of healthcare, participating in research like this, as well as sharing her own experiences of conducting research that strives to be as inclusive as possible for everyone: "...you don't want to speak to people or at them, telling them what they should be doing. You want to be having that two-way conversation".

At 00:10:32 Rachel discusses challenges in patient and public involvement (PPI), including diverse recruitment, avoiding tokenism, using inclusive language, and ensuring accessibility for PPI contributors. She also shares strategies involving open and transparent communication: "...when I was putting out an advert to see if people wanted to get involved, I had a picture of my face. I shared a little bit about my own experiences, and I offered for people to get in touch and ask me questions", as well as diverse recruitment approaches, and adapting meetings to be accessible.

Highlights from EP2

"...as a researcher, you are the person with power". 00:06:08 Ian explains user pluralism and the importance of safeguarding participants and fellow researchers within their safe space. 00:17:04 Ian explains his motivations for working with the EmbedEDI project, emphasising the need for user researchers to understand and address issues sensitively, think critically, and enhance their practices to avoid "naivety".

"It meant that we are not going on autopilot and just doing the same thing time and time again...it makes us think differently". 00:19:44 Jon discusses Paper's successful partnership with Dr Kirsty Liddiard and Dr Ryan Bramley from The University of Sheffield, exploring how D/deaf individuals experience suspense in film. Collaborations like this blend industry and academia, offering diverse expertise, fresh perspectives, varied methods, and opportunities for mutual learning.